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This is a video presentation I made when i was asked to be the special speaker at a sports awards. It shows my life so far and my sailing achievements while 'Thriving with Friedreichs'.

Sailing my 2.4mR and kit testing pre-event at Queen Mary Reservior

I was diagnosed with the genetic disorder Friedreichs Ataxia when I was 13 years old. I have been using a wheelchair from the age of 18. I love sail racing, fishing, travelling and the sun, all with my mates and maybe a cheeky little nightclub or two thrown in!! Now I have finally plucked up the courage to document the fun and difficulties I face... it's mainly fun!! I am hoping to help raise the awareness of Ataxia UK and fundraisefor this amazing charity.

Will takes an electric handcycle wheelchair attachment on the plane to Ibiza and tests it on various terrains. This really does increase a wheelchair users independence and gives them the opportunity to visit more inaccessible places and have great adventures. Truly amazing!!

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A photo posted by Paff La Girafe (@pafflagirafe) on