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This is a video presentation I made when i was asked to be the special speaker at a sports awards. It shows my life so far and my sailing achievements while 'Thriving with Friedreichs'.

Sailing my 2.4mR and kit testing pre-event at Queen Mary Reservior

I was diagnosed with the genetic disorder Friedreichs Ataxia when I was 13 years old. I have been using a wheelchair from the age of 18. I love sail racing, fishing, travelling and the sun, all with my mates and maybe a cheeky little nightclub or two thrown in!! Now I have finally plucked up the courage to document the fun and difficulties I face... it's mainly fun!! I am hoping to help raise the awareness of Ataxia UK and fundraisefor this amazing charity.

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A photo posted by Paff La Girafe (@pafflagirafe) on