Thriving With Friedreich's


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I started these Vlogs to show that life is far from over just because I'm using a wheelchair, a fear I had when I was diagnosed - but I was so wrong!!


I am hoping to help the Ataxia UK charity out with some fundraising in the future, so please join me on my vlogging journey.


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Sailing my 2.4mR and kit testing pre-event at Queen Mary Reservior

I was diagnosed with a genetic disorder called Friedreichs Ataxia when I was 13 years old. I have been using a wheelchair to get around from the age of 18. I love sailing, racing, fishing, travelling, sun, hanging with my homies and a cheeky little nightclub or two!! Now I have finally plucked up the courage to document the fun and dificulties I face... it's mainly fun!! Enjoy my Vlogs.

Another week 2.4mR training in Weymouth for Will Street. Some members of the British Sailing Team were there too including Olympians, can you spot them? For fun, why not add their names and classes sailed in the comments!


A photo posted by Paff La Girafe (@pafflagirafe) on

We won! Jonny and I got Gold at the 2018 Para World Sailing Championship in the RS Venture Class. Loads of learning and great progression for us during the week in Sheboygan. It seemed we managed to implement all that learning in to the 'winner takes all' final race. World Champions!